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There’s aat the top of the staircase where I realize how foolish and controlling I’ spurred on by absolute fear for Regan’s life A lot of the stuff I read on the plane about PNH was over ed to simplify it into understandable terms
Regan has an incredibly rare bone marrow failure disease that destroys her red blood cells It occurs because the protein shield around her red blood cells is , so it can’t protect the cells from attack by the body’s own immune system I don’t pretend to understand h to scare the shit out of me It affects only one in adisease What s turn to jelly hen I read the nosis That fucking knocked the wind out of ot lost inLance
But then I read more, and I became heartened when I familiarized myself with the expensive medication she needed
Over four hundred thousand dollars a year to receive Salvistis, which binds to the proteins that destroy the red blood cells It’s a lifesaving drug, and she must have it
Simple as that
Therefore, I’ toward her apartan, returning her to Phoenix with , then have her on my insurance by Monday afternoon
My fist is ha at the thin wooden door without any hesitation Withinon the other side before the door is opening to reveal a short Asianup all over the place
“Yeah?” he rasps as he rubs a hand over his face I clearly woke him up
“Is Regan here?” I ask, assu this to be a rooe, although a few inches shorter than her, but that ht not matter
It would to et stuck on shit like that
Theon me “Um… yeah, I think so I fell asleep on the couch after work last night so not really sure”
He steps backward, welco room The apartment is bare bones and cheaply furnished, but the cost of living is high in this southern California coastal town, so I’m not surprised
I shut the door behind me, and the man disappears into a short hallhere I can see hiie… you in there?”
Reggie? That totally sounds like a nickna and not just walking in?
My heartbeat picks up when the door opens and Regan steps into the hallway She gives theelse, a wan smile “What’s up?”